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Grant Ninja

Centers for Disease Control - NCEZID

Long-term health outcomes of people living with spina bifida

Key facts

Award
$100,000 – $300,000
Opens
Aug 26, 2026
Closes
Oct 26, 2026
Location
United States
Category
Healthcare

Who can apply

  • Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
  • County governments
  • Native American tribal governments (Federally recognized)
  • City or township governments
  • Special district governments
  • Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
  • Private institutions of higher education
  • Independent school districts
  • Small businesses
  • For-profit organizations other than small businesses
  • State governments
  • Public and State-controlled institutions of higher education

About this grant

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care.

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